August So Far!

August has been a lot of infusions and days of feeling really tired and soar. I have been so thankful to be able to do a lot of swimming, which feels really good for my legs. It’s exercise that doesn’t hurt as bad as it does on land. I have been able to do some fun activities with my younger brother, friends that I don’t see often, and family! I did get an early birthday gift, which is a leg compressor that has helped my spastic/ very tight muscles (the worst in my legs) feel so much better. August so far has been a month to reset before summer is over and appointments and MRIs become more frequent. Hopefully August will end  and September will start with good news and show some physical progress is being made. I’ll get IVIG, Cytoxan, and see my neurologist all in early September before an MRI in October.