More July Fun!

 I did it I made it so that you now can purchase a Persistent and Patient shirt (link is at the bottom). Growing up in Moorpark we always started July with the 3rd of July. That day I had my usual IVIG treatment, but also went with my dad to his friends very nice house for a BBQ and can see the fireworks from their backyard. Started this month with the typical 4th celebration, it was great at my Aunt Jackie’s house! Went over later in the day and got to see her granddaughters who live in Minnesota. We spent the day playing right, left, center. It was a lot of fun, but we didn’t use any money. You can see the fireworks kind of from their backyard. Set off sparklers and other fun things. But the month was great with chemo on the 10th and kick off to selling my T- shirt! Thank you to everyone that supported me and bought a shirt! Chemo has been difficult but I have an amazing support system. I was retaken to the infusion center and had to switch rooms 3 times, until they found one for me with a working bathroom 🙏🏻 a necessity! The day is long, with a 2 hour bag of fluids and meds, then a few other things they mix in, then the hour Cytoxan, more meds, and finishing with a 3 to 4 hour bag of other fluids. The day is long but I continue to work out and I swim as much as I can. Later on that month I was able to see my dads side of the family and hangout with my cousin, aunts, and brothers. 💗

https://www.bonfire.com/persistent-and-patient-1/

Made a shirt!

June has been a crazy month, but so many great things have happened! Started off the month with lots of ideas! The month of June we got to celebrate Brad for his 25th birthday! We went to a great lunch at Islands, played a round of bowling and a trip to the Moorpark College teaching zoo. The month was full of cake, swimming, and adventures! I did have to get a few IV treatments, but still had one of the best and most fun months! I'm still figuring out how many more chemo treatments I’ll need to have, but everything is moving in the right direction! The most exciting news is by the end of June I came up with a design for a shirt, that hopefully I will be able to figure out how to get a link for it, so that anyone who would be interested in purchasing one can. It is just a reminder for anyone (including myself)  that they can do whatever they set their minds to if they don’t give up. More on the shirt by the end of July!

May update!

My best furry friend got recertified in May! I spent the end of May working with him a little more and getting Lincoln ready for the recertification test. He had to take off a few pounds, but he did it! We had to get recertified with a new lady I have never met, and it was showing that he does his commands over FaceTime. Luckily, Lincoln pulled it together and now we can go another 3 years being a team! He did get a lot of love and treats after. May also involved, a trip with my boyfriend to Los Gatos, seeing one of my best friends since elementary school get married, and more IVIG and chemo IV infusion, and a few birthdays in between. 3 chemo infusions done and another one in a few weeks. I’ll be having a MRI at the start of July and am believing and praying that the chemo treatments are working!

Rowing

A little over a year ago I had the opportunity to try rowing! I wish I would have kept it up, but it is an expensive sport. I randomly had gotten in touch with an old friends mom and she offered to let me try rowing. Since it is mostly an arm exercise, I was happy it would be something I could do. I’ve done a lot of rowing on a machine but this experience was way more complicated. You are rowing backwards and have to learn all the terms and how to get back in the shell (name of the boat) if it flips over. There is the stern (back) of the shell and the bow (front). You are rowing backwards and have to row at the same time and be super in sync with the team. The man that was teaching me was very helpful and a great teacher. Luckily he took charge and would yell, sweep and catch so that we would take a stroke at the same time. You also have to feather your oars on top of the water so that after a stroke you aren’t slowing down your team. The starboard (right) and the port (left) of the shell do everything at the same moment. There is so much more to learn than what I did in a hour and a half lesson. I wish I would have continued to row, but it is an exhausting sport and takes a lot of strength,patience, and memorization. I would go again for fun but wouldn’t want to join a team. 

Short Catch Up

I haven’t posted anything in a long time! What happened in the past two (or more) years! Way to much to write in a post. 

1. I have done a lot of IV treatments and seen many different doctors.
2. I did an oral chemotherapy treatment, that was a 2 year process, but sadly after getting an MRI I was told that it really didn’t do what we were hoping it would. 
3. Found the best boyfriend in the world!
4. Have taken some trips.
5. Love my service dog, Lincoln.
6. Continue to workout the best I can.
7. I’m about to start a new IV chemotherapy treatment.
8. Had to go to a fertility doctor to help me decide what to do for a possibility that I may want in the future. 
9. Cried a lot, laughed a lot, and have found a new me. 
10. I’m also still undiagnosed but use the name Atypical MS as a diagnosis. 
11. Have had a lot of fun!

I hope that I’ll start talking about my story again more, and life in general even if it isn’t on this platform. 

Quarantine 🤦🏼‍♀️

It has been almost three weeks since I have had my exosome stem cell infusion. It has been a tough three weeks. I have been tired and emotional which is something to be expected. I can't say that I am walking amazing or there has been some life-altering change, but I can say that I feel more "alert." I am very happy that I got two immune-boosting treatments before the virus scare (exosomes and IVIG). This week I am going to be able to start doing more of my regular strenuous exercises. I am very thankful that I do not go to a gym and I see my trainer because I can keep working out for as long as my dad still is letting me go out with the coronavirus. I had to stop my hyperbaric treatments because of the circumstances, but they will start again as soon as the world goes back to normal. I don't want to say that this treatment didn't work because I definitely feel better than I did before I started, but I can't say that I am walking how I want to. This doesn't mean that I will stop trying treatments or doing what doctors say but I'd be lying if I said that I'm not disappointed. This has been a good time for me to slow down and let my body rest, to use exercise equipment at home and appreciate the little things. I have learned a lot from this experience and am going to try to fasting for a week at least once a month, it is a really good way to reset your body and mind. Hopefully, I keep seeing small improvements even if they are as simple as mental clarity.

Infusion Day 💉😆

Today I got exosomes (stem cells). It didn't take very long and afterward, I got to go on the beemer three times so that the stem cells would move throughout my body. Before and during the treatment I had my feet on a device called a Sima. I also had infrared lights on my head, down my spine, and back of my neck. I looked crazy but we did everything to wake my body up and have the stem cells go to the places that need healing. The red lights are supposed to stimulate and strengthen the mitochondria of the cells and the sima does something with frequencies in your body. When the infusion was done they put me on the Bemer for three rounds because it increases the blood flow of the body. I will continue my fast for the next couple of days and hopefully will see a change. Out of all the videos we have watched and testimonies we have heard, it can take anywhere from immediately, to 3-6 weeks and months for even more differences. At this point, any slight difference would make this all worth it. I am going to take it easy after infusion day and then start moving a lot and get the stem cells flowing so that they can do their job. I hope that you enjoy these crazy pictures of me at 7 am this morning (Not posting the hideous pictures of me with red lights wrapped around my head)

 (This is the Sima) 

(Infusion)

                 (Getting on the Bemer)