September Update!

In September I mostly regrouped! I started September with my 25th birthday and celebrated the day with Bradley! We went all over the Ventura Harbor and had a day of food and fun! My two favorite things to do! I was showered with so many birthday wishes and gifts. A few days after I had to go and get a Chemo infusion but it was my second to last. I saw my doctor at children’s and he put a plan together to finish chemo, start a new med while I slowly am taken off prednisone! Prayers needed there 💗 I haven’t been prednisone free in so many years. But after all of that I got to see one of my best friends and catch up with others 🤗. There have been a few extra shots/ IVs that I have been doing to help my body as I transition to no more medication. This is going to be a long slow process but I have very high hopes!! I ended out September seeing an awesome motivational speaker! Victoria Arlen was speaking in Santa Barbara and last minute after hearing her story on the news my dad and I got tickets to see her. It was encouraging to hear a story so similar to mine and to see what she has made of herself despite her pass and some disability she still has to over come. It was a story of healing through gratitude! I start October with my final chemo treatment and the transition will begin 🙏🏻

Chemo infusion Day

On the days that I go get chemo are the days that require some extra prep and post work. The day before I try to drink a lot of water so that my body is hydrated and prepping my veins. I’ll take it easy that day and pack up a bag of what I want to bring. I set out my clothes, take off my jewelry and bring chargers or any snacks I know I’ll want. We usually get up around 4am, leave the house by 6am, and chemo starts at 8am. We get to Children’s, maybe grab a coffee and go to the 3rd floor to wait more. Once they find a room to put me in, I get my nurse and they will find a vein for the infusion. I start my premeds with a bag of fluids for the first 2ish hours. Then they give me oral Benadryl and a drug that helps with 🤢 nausea. Some liquid drug is infused and some more IV You flush stuff. The chemo finally starts and runs for an hour. The process is long and boring. There is rushing around outside the door and always noise. There is a nurse that comes by every hour to check your vital signs and you track your in take and output of liquids. After that you get another bag of fluids for 2+ hours before you can leave.

Finally the day is over! We get to go home!